The case for a global rare-diseases registry

Lancet. 2011 Mar 26;377(9771):1057-9. doi: 10.1016/S0140-6736(10)60680-0. Epub 2010 Jul 30.

Authors

Christopher B Forrest¹, Ronald J Bartek, Yaffa Rubinstein, Stephen C Groft

Affiliation

¹ Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA. forrestc@email.chop.edu

PMID: 20674966
DOI: 10.1016/S0140-6736(10)60680-0

No abstract available

MeSH terms

Cooperative Behavior
Humans
International Cooperation*
Rare Diseases*
Registries*