Chest
Clinical Investigations: Cystic FibrosisValidation of an Instrument Measuring Patient Satisfaction With Chest Physiotherapy Techniques in Cystic Fibrosis
Section snippets
Setting
This study was performed at Baylor College of Medicine, a large, metropolitan, academic CF care center accredited by the United States Cystic Fibrosis Foundation. It was completed in compliance with institutional review board policies.
Study Design
A two-page written survey containing two separate questionnaires was mailed to 349 CF patients cared for at the center. A $5 gift certificate was sent to individuals returning a completed survey. Responses were provided by either the patient or, in the case of
Results
Seventeen survey packets (5%) were returned by the postal service as undeliverable. Of the remainder, 129 survey packets (39% of those delivered) were completed and returned. A repeat survey was sent to 20 responders to perform test-retest analysis. Sixteen of these surveys (80%) were completed and returned.
Survey responders included 66 male (51%) and 63 female (49%) subjects, ranging in age from 2 months to 47 years. FEV1 data were available on 82 subjects, with a mean of 76% of predicted
Discussion
Although the use of CPT for airway clearance in CF has been a cornerstone in CF therapy for > 40 years, it is only within the past 5 years that studies have clearly shown PDPV to be effective in slowing the deterioration of lung function in CF.12, 13, 14 Studies by Reisman and colleagues13 and Desmond and colleagues14 have established PDPV as an effective therapy in CF, and the ”gold standard” against which other CPT techniques are measured. Despite the proven efficacy of PDPV, compliance is
Conclusion
Despite its role as a cornerstone therapy for airway clearance in CF, PDPV continues to be plagued with compliance and satisfaction concerns that limit its effectiveness in home self-care. Studies have demonstrated the benefit of PDPV and, to a limited extent, some of the newer ACTs, but there is a continued need for research in this area, with expanded attention to secondary outcomes such as patient satisfaction and quality of life. This satisfaction measure can provide useful information in
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