Orphan diseases

Assessment of clinical and instrumental efficacy of Expiratory Flow Accelerator technology in patients with Primary Ciliary Diskinesia
Alessia Masciave', Silvano Dragonieri, Enza Pentassuglia, Paola Giordano, Luigi Mappa

European Respiratory Journal Sep 2020, 56 (suppl 64) 394; DOI: 10.1183/13993003.congress-2020.394
European Cystic Fibrosis Society Clinical Trials Network (ECFS-CTN): structure and impact since 2009
Silke Van Koningsbruggen-Rietschel, Damian G. Downey, Lieven Dupont, Fiona Dunlevy, Veerle Bulteel, Kate Hayes, Nick Simmonds, Nadine Dufeu, Hettie M. Janssens, Dorota Sands, Paola De Carli, Isabelle Sermet-Gaudelus, Kris De Boeck, Tim Lee, Isabelle Fajac

European Respiratory Journal Sep 2020, 56 (suppl 64) 367; DOI: 10.1183/13993003.congress-2020.367
A cohort of patients with a progressive fibrosing phenotype of interstitial lung disease (PF-ILD) other than idiopathic pulmonary fibrosis (IPF): the PROGRESS study
Mouhamad Nasser, Sophie Larrieu, Salim Si-Mohamed, Kais Ahmad, Loïc Boussel, Marie Brevet, Lara Chalabreysse, Céline Fabre, Sébastien Marque, Didier Revel, Francoise Thivolet-Bejui, Julie Traclet, Sabrina Zeghmar, Delphine Maucort-Boulch, Vincent Cottin

European Respiratory Journal Sep 2020, 56 (suppl 64) 440; DOI: 10.1183/13993003.congress-2020.440
Epidemiology and mortality of non-idiopathic pulmonary fibrosis (IPF) progressive fibrosing interstitial lung disease (PF-ILD) using the French national health insurance system (SNDS) database in France: the PROGRESS study
Mouhamad Nasser, Sophie Larrieu, Loïc Boussel, Salim Si-Mohamed, Fabienne Diaz, Sébastien Marque, Jacques Massol, Didier Revel, Francoise Thivolet-Bejui, Lara Chalabreysse, Delphine Maucort-Boulch, Vincent Cottin

European Respiratory Journal Sep 2020, 56 (suppl 64) 444; DOI: 10.1183/13993003.congress-2020.444
Allergy in patients with lymphangioleiomyomatosis
Elżbieta Radzikowska, Joanna Nowacka-Ejsmont, Joanna Miłkowska-Dymanowska, Elzbieta Wiatr, Katarzyna Błasinska, Adriana Rozy, Miquel Angel Pujana

European Respiratory Journal Sep 2020, 56 (suppl 64) 241; DOI: 10.1183/13993003.congress-2020.241
Physical activity levels in women with lymphangioleiomyomatosis
Douglas Silva Queiroz, Martina R Oliveira, Alexandre F Amaral, Cibele C B Marques Da Silva, Bruno G Baldi, João M Salge, Carlos R R Carvalho, Celso R F Carvalho

European Respiratory Journal Sep 2020, 56 (suppl 64) 257; DOI: 10.1183/13993003.congress-2020.257
Incremental shuttle walking test evaluates the maximal exercise capacity of patients with lymphangioleiomyomatosis
Douglas Silva Queiroz, Martina Rodrigues Oliveira, Alexandre Franco Amaral, Cibele Cristine Berto Marques Da Silva, Bruno Baldi, João Marcos Salge, Carlos Roberto Ribeiro Carvalho, Celso Ricardo Fernades Carvalho

European Respiratory Journal Sep 2020, 56 (suppl 64) 270; DOI: 10.1183/13993003.congress-2020.270
Macitentan in pulmonary hypertension (PH): Data from OPUS and OrPHeUS real-world data sets
Nick Kim, Richard Channick, Kelly Chin, Lana Melendres-Groves, Ashwin Ravichandran, Monika Brand, Megan Flynn, Sandrine Leroy, Adele Morganti, Vallerie Mclaughlin

European Respiratory Journal Sep 2019, 54 (suppl 63) PA5458; DOI: 10.1183/13993003.congress-2019.PA5458
Changes in FVC in the SENSCIS trial of nintedanib in patients with systemic sclerosis-associated ILD (SSc-ILD)
Kristin B. Highland, Arata Azuma, Aryeh Fischer, Masataka Kuwana, Toby M. Maher, Maureen D. Mayes, Ganesh Raghu, Mannaig Girard, Margarida Alves, Martina Gahlemann, Oliver Distler

European Respiratory Journal Sep 2019, 54 (suppl 63) RCT1882; DOI: 10.1183/13993003.congress-2019.RCT1882
Late Breaking Abstract - Phase II trial of pirfenidone in patients with progressive fibrosing unclassifiable ILD (uILD)
Toby Maher, Tamera J. Corte, Aryeh Fischer, Michael Kreuter, David J. Lederer, Maria Molina-Molina, Judit Axmann, Klaus-Uwe Kirchgaessler, Katerina Samara, Frank Gilberg, Vincent Cottin

European Respiratory Journal Sep 2019, 54 (suppl 63) RCT1880; DOI: 10.1183/13993003.congress-2019.RCT1880

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