Proposed conceptual and measurement model of health related quality of life in chronic alveolar hypoventilation. Modified from Sullivan et al 9
| <Concepts> | <Instruments> |
| Disease-related and generic | Respiratory, sleep oriented and generic |
| Condition-specific | MRC |
| Complaints/ consequences | Breathlessness |
| Sleep-related problems | |
| Sleep disturbances | |
| Daytime hypersomnolence | |
| Morning headache | |
| Generic: functional health | SIP |
| Physical/ mobility oriented consequences | Overall |
| Physical dimension | |
| Ambulation, Mobility, Body care/ movement, | |
| Sleep/ rest, Home management, Work, | |
| Recreation/ pastimes, Eating | |
| Social/ emotional/ cognitive consequences | SIP |
| Psychosocial dimension | |
| Social interaction, Emotional behaviour, | |
| Alertness behaviour, Communication | |
| Generic: Mental health | HAD |
| Distress/ well-being | Depression |
| Anxiety | |
| MACL | |
| Overall | |
| Pleasantness/ unpleasantness | |
| Activation/ deactivation | |
| Calmness/ tension | |
| Overall quality of life | Global rating |
MRC: Medical Research Council
SIP: Sickness Impact Profile
HAD: Hospital Anxiety and Depression scale
MACL: Mood Adjective Check List