TABLEĀ 1

Objectives and initial projects of the European Alpha-1 Research Collaboration (EARCO)

Objectives of EARCO
  • 1

  • To build a network of patients, researchers and clinical experts in AATD to guide future clinical and research priorities in Europe

  • 2

  • To create the EARCO prospective registry with a quality control system, a European AATD registry to facilitate patient recruitment for research and quality improvement initiatives across healthcare systems

  • 3

  • To establish a consensus among patients and physicians on the main clinical and translational research priorities in the field of AATD

  • 4

  • To support and encourage early career researchers in the field of AATD through involvement in network activities

  • 5

  • To increase the number and quality of clinical trials performed in AATD across Europe

Initial projects of EARCO
  • 1

  • Development of the EARCO international registry

  • 2

  • Survey for patients and healthcare providers of unmet needs in research in AATD

  • 3

  • Quality control programme of laboratory diagnosis of AATD in Europe

  • 4

  • Survey on the initiation and indications of augmentation therapy in Europe

AATD: alpha-1 antitrypsin deficiency.