Summary of measures of health-related quality of life used in pulmonary arterial hypertension (PAH)
| Measure [ref.] | Domains | Items n | Recall period |
| Generic | |||
| SF-36 [9] | Physical functioning, role limitations physical, bodily pain, general health, vitality, social functioning, role limitations emotional, mental health | 36 | Now to past 4 weeks |
| EQ-5D [10] | Health state description: mobility, self-care, usual activities, pain/discomfort, anxiety/depression; overall health status (visual analogue scale) | 51 | Today |
| NHP [11] | Mobility, pain, social isolation emotional reactions, energy level, sleep | 38 | At the moment |
| HADS [12] | Anxiety, depression | 14 | At the moment |
| PAH specific | |||
| CAMPHOR [13] | Overall symptoms (energy, breathlessness, mood), functioning, quality of life | 65 | Today |
| MLHFQ [14] | Physical, emotional | 21 | 4 weeks |
| LPH [15] | Physical, emotional | 21 | 1 week |
| CHFQ [16] | Dyspnoea, fatigue, emotional function, mastery | 20 | 2 weeks |
| emPHasis-10 [17] | Unidimensional | 10 | At the moment |
| PAH-SYMPACT [18] | Respiratory symptoms, tiredness, cardiovascular symptoms, other symptoms, physical activities, daily activities, social impact, cognition, emotional impact | 41 | 24 h for symptoms; 7 days for imacts |
SF-36: Medical Outcomes Study 36-item short form; EQ-5D: EuroQol Group 5-Dimension Self-Report Questionnaire; NHP: Nottingham Health Profile; HADS: Hospital Anxiety and Depression Scale; CAMPHOR: Cambridge Pulmonary Hypertension Outcome Review; MLHFQ: Minnesota Living with Heart Failure Questionnaire; LPH: Living with Pulmonary Hypertension questionnaire; CHFQ: Chronic Heart Failure Questionnaire; emPHasis-10: 10-question survey proposed by the Pulmonary Hypertension Association UK. Information based on and expanded from [6].