TABLE 2

Ranking of patients' and carers' research priorities in bronchiectasis

Research priorityArea of research
 1How does bronchiectasis develop and continue?How bronchiectasis is managed by doctors
 2How can communication between healthcare professionals and each patient be optimised to improve self-management?Self-management by patients
 3What makes some patients get worse?How bronchiectasis is managed by doctors
 4What are causes of bronchiectasis?How bronchiectasis is managed by doctors
 5What are the triggers for an exacerbation?How bronchiectasis is managed by doctors
 6How can self-management programmes and care plans designed with each person be most effective in helping patients have greater control over their condition and recognise/manage an exacerbation?Self-management by patients
 7How can physiotherapy be accessible to all patients, and teach them to use the techniques and how to use the equipment at home effectively?Self-management by patients
 8How can reliable, plain language information on living with bronchiectasis be accessible to patients?Self-management by patients
 9How can patients at increased risk of poor outcomes or needing urgent treatment be identified?How each person's bronchiectasis is monitored
10How can awareness of bronchiectasis in community care services be improved (e.g. among community-based nurses and physiotherapists)?How bronchiectasis is treated
11Are there ways to diagnose bronchiectasis earlier?How bronchiectasis is managed by doctors
12How can awareness of the role of physiotherapy and pulmonary rehabilitation in treating bronchiectasis be improved?How bronchiectasis is treated
13Can we test new techniques for managing bronchiectasis in real-world environments, such as at home and community settings (not in the laboratory or in hospitals), to improve how bronchiectasis is managed?How bronchiectasis is managed by doctors
14Is there a link between getting a cold and exacerbation?How bronchiectasis is managed by doctors
15Can regular lung function testing help notice changes or increased risk of an exacerbation?How each person's bronchiectasis is monitored
16Is there a relationship between bronchiectasis and other conditions, such as asthma, “acid” reflux and inflammatory bowel diseases?How bronchiectasis is managed by doctors
17Can new medicines that can be taken in new ways be developed (e.g. inhaled or nebulised)?How bronchiectasis is treated
18Can regular sputum examinations when a person is stable and during exacerbation help us learn more about how the condition changes?How each person's bronchiectasis is monitored
19Can we develop better ways of teaching people to use their medicines?How bronchiectasis is treated
20Can we provide and will providing test results help each patient follow their progress?Self-management by patients
21How can primary care doctors be educated to prescribe the same dose/length of antibiotic therapy for exacerbations in bronchiectasis as used in CF?How bronchiectasis is treated
22Can vaccines be developed/used to prevent exacerbations?How bronchiectasis is treated
23How often/why does bronchiectasis occurs in certain groups of people?How bronchiectasis is managed by doctors
24How can we ensure that each person has access to a home intravenous antibiotic service to avoid unnecessary hospital admissions?Self-management by patients
25How can awareness, and use of peer support forums and social media to exchange information be raised?Self-management by patients
26How can patients have and use equipment at home to monitor their symptoms?How each person's bronchiectasis is monitored
27How can the monitoring and treatment of coughing up blood be achieved?How each person's bronchiectasis is monitored
28Can using longer-term antibiotic therapy when a person's condition is stable improve treatment?How bronchiectasis is treated
29Can having regular computed tomography scans to look for changes and increased risk of an exacerbation improve monitoring?How each person's bronchiectasis is monitored
  • CF: cystic fibrosis.