The European IPF Patient Charter developed following the Working Group meeting

Patients with IPF and their families should have fair and consistent rights to:
  • Early and accurate diagnosis, by raising awareness of IPF and recognising IPF as a chronic condition

  • Equal access to care, including medication and transplantation, irrespective of age, by coordinating timely and efficient drug approvals at a national level and revising the eligibility criteria for lung transplantation

  • A holistic approach to standardise IPF management, by involving all aspects of support from early diagnosis to treatment and rehabilitation including correct referral, access to multidisciplinary teams, lung transplantation, emotional support, ambulatory and domiciliary services

  • Comprehensive and high-quality information about IPF, including its treatment, transplant information and emotional care for both patients and families

  • Better access to palliative care and end-of-life care, with support for both patients and their families

  • IPF: idiopathic pulmonary fibrosis.