Country | EU member | Population 2009# [7] | GNI per capita 2009 $ [8] | Reporting data to the ECFS registry 2007–2010 | Country registry coverage ⩾85% | Longitudinal registry data ⩾4 years | CF prevalence per 10 000¶ | Country group for analysis |
Belgium | Yes | 10.8 | 36 670 | Yes | Yes | Yes | 1.030 | A |
Czech Rep. | Yes | 10.5 | 24 260 | Yes | Yes | Yes | 0.556 | A |
Denmark | Yes | 5.5 | 39 240 | Yes | Yes | Yes | 0.761 | A |
France | Yes | 62.6 | 34 610 | Yes | Yes | Yes | 0.750 | A |
UK | Yes | 61.8 | 35 280 | Yes | Yes | Yes | 1.370 | A |
Netherlands | Yes | 16.5 | 40 370 | Yes | Yes | Yes | 0.781 | A |
Germany | Yes | 82.0 | 36 860 | Yes | Yes | No | 0.829 | B |
Hungary | Yes | 10.0 | 19 530 | Yes | Yes | Yes | 0.409 | B+ |
Ireland | Yes | 4.5 | 33 560 | Yes | Yes | No | 2.980 | B |
Israel | No | 7.6 | 26 530 | Yes | Yes | No | 0.564 | B |
Latvia | Yes | 2.3 | 18 220 | Yes | Yes | No | 0.104 | B |
Moldova | No | 4.1 | 3750 | Yes | Yes | No | 0.100 | B |
Serbia | No | 7.3 | 11 000 | Yes | Yes | No | 0.166 | B |
Sweden | Yes | 9.3 | 38 320 | Yes | Yes | No | 0.403 | B |
Slovenia | Yes | 2.0 | 26 420 | Yes | Yes§ | No | 0.328 | B |
Slovakia | Yes | 5.4 | 21 640 | Yes | Yes | No | 0.627 | B |
Austria | Yes | 8.4 | 38 890 | Yes | No | No | 0.839 | C |
Switzerland | No | 7.8 | 48 380 | Yes | No | No | 0.737 | C |
Cyprus | Yes | 1.1 | 31 230 | No | No | No | 0.335 | C |
Spain | Yes | 46.9 | 31 350 | Yes | No | No | 0.546 | C |
Finland | Yes | 5.3 | 36 450 | No | No | No | 0.123 | C |
Greece | Yes | 11.3 | 28 760 | Yes | No | No | 0.521 | C |
Italy | Yes | 60.3 | 32 370 | Yes | No | No | 0.872 | C |
Luxembourg | Yes | 0.5 | 52 190 | No | No | No | 0.431 | C |
Malta | Yes | 0.4 | 23 730 | No | No | No | 0.579 | C |
Portugal | Yes | 10.6 | 24 250 | Yes | No | No | 0.271 | C |
Bulgaria | Yes | 7.6 | 13 520 | No | No | No | 0.226 | D |
Belarus | No | 9.7 | 13 790 | No | No | No | 0.191 | D |
Estonia | Yes | 1.3 | 19 350 | No | No | No | 0.618 | D |
Lithuania | Yes | 3.3 | 18 540 | No | No | No | 0.130 | D |
Poland | Yes | 38.1 | 18 250 | No | No | No | 0.256 | D |
Romania | Yes | 21.5 | 15 340 | No | No | No | 0.106 | D |
Russian Fed. | No | 141.8 | 18 860 | Yes | No | No | 0.191 | D |
Ukraine | No | 46.0 | 7130 | No | No | No | 0.191 | D |
Country groups were defined as follows, group A: contributing data to the ECFS Patient Registry, coverage ⩾85% of the cystic fibrosis (CF) population, longitudinal data linked at the patient level in the ECFS Patient Registry for at least 4 years. Group B: contributing data to the ECFS Patient Registry, coverage ⩾85% of the CF population, longitudinal data for <4 years or no longitudinal data. Group C: not contributing data to the ECFS Patient Registry or coverage <85% of the CF population and gross national income (GNI) per capita ⩾$23 000. Group D: not contributing data to the ECFS Patient Registry or coverage <85% of the CF population and GNI per capita <$23 000. #: in millions; ¶: estimates of CF prevalence in individual countries was taken from Farrell [3], except for: Switzerland, where prevalence was based on the mean prevalence of the 27 European Union (EU) countries [3]; Moldova, Israel and Serbia, where prevalence was calculated using the number of CF patients reported to the ECFS registry and population of the country; Russian Federation, Belarus and Ukraine, where prevalence was reported by the Russian CF Patient Registry [9]. +: Hungary was included in group B because the number of deaths were not systematically reported to the ECFS Patient Registry between 2007 and 2010. §: Slovenia had coverage at 75%. The GNI per capita was based on purchasing power parity in current international dollars ($).