Study population | UK | USA | |
Participants n | 21 | 11 | 10 |
Sex | |||
Male | 3 (14) | 1 (9) | 2 (20) |
Female | 18 (86) | 10 (91) | 8 (80) |
Age years | |||
18–35 | 12 (57) | 5 (45) | 7 (70) |
36–50 | 4 (19) | 1 (9) | 3 (30) |
51–65 | 3 (14) | 3 (27) | |
>65 | 2 (10) | 2 (18) | |
Age at diagnosis years | |||
<5 | 4 (19) | 1 (9) | 3 (30) |
5–12 | 4 (19) | 0 | 4 (40) |
12–18 | 1 (5) | 1 (9) | 0 |
>18 | 12 (57) | 9 (82) | 3 (30) |
Race/ethnicity | |||
UK | |||
White British | 9 (82) | ||
British Asian | 1 (9) | ||
Asian | 1 (9) | ||
USA | |||
Caucasian | 10 (100) | ||
Hispanic | 9 (90) | ||
White non-Hispanic | 1 (10) | ||
Symptoms | |||
Chronic wet cough | 21 (100) | 11 (100) | 10 (100) |
Persistent runny nose | 20 (95) | 11 (100) | 9 (90) |
Recurrent sinus disease | 16 (76) | 8 (72) | 8 (80) |
Infertility | 8 (38) | 4 (36) | 4 (40) |
Situs abnormalities | 12 (57) | 8 (72) | 4 (40) |
Cardiac disease | 0 | 0 | 0 |
FEV1# % predicted | |||
Range | 31–98 | 29–102 | |
Mean±sd | 64±21 | 65±25 | |
Employment status | |||
In paid employment | 11 (52) | 4 (36) | 7 (70) |
Student | 4 (19) | 2 (18) | 2 (20) |
Retired due to age | 1 (5) | 1 (9) | 0 |
Retired/left work due to PCD | 4 (19) | 3 (27) | 1 (10) |
Carer for dependants | 1 (5) | 1 (9) | 0 |
Other | 0 | 0 | 0 |
Marital status | |||
Single | 5 (24) | 3 (27) | 2 (20) |
Living with partner/spouse | 16 (76) | 8 (73) | 8 (80) |
Separated from partner/spouse | 0 | 0 | |
Widowed | 0 | 0 | |
Fertility | |||
Conceived naturally | 3 (27) | 0 | |
Conceived through IVF | 1 (9) | 2 (20) | |
Infertility | 3 (27) | 2 (20) | |
Not yet known | 4 (36) | 6 (60) |
Data are presented as n (%), unless otherwise stated. #: forced expiratory volume in 1 s (FEV1) is based on n=5 participants in the UK and n=8 in North America; data were unavailable for telephone interviews.