| One-to-one interviews | Focus groups | ||||||||||
| Quotes n | Patients addressing each theme n | Quotes n | Patients addressing each theme n# | ||||||||
| UK | Netherlands | Belgium | Total | UK | Netherlands | Belgium | Greece | Total | |||
| Subjects | 7 | 8 | 8 | 23 | 13 | 15 | 13 | 13 | 54 | ||
| Reduced amount of physical activity | |||||||||||
| Walking on one level | 51 | 7/7 | 6/8 | 6/8 | 19/23 | 90 | 8/13 | 6/15 | 5/13 | 9/13 | 28/54 |
| Household tasks | 25 | 5/7 | 7/8 | 5/8 | 17/23 | 30 | 9/13 | 6/15 | 5/13 | 8/13 | 28/54 |
| Climbing stairs | 39 | 6/7 | 4/8 | 5/8 | 15/23 | 48 | 5/13 | 6/15 | 8/13 | 7/13 | 26/54 |
| Bathing/showering | 18 | 4/7 | 4/8 | 6/8 | 14/23 | 18 | 6/13 | 0/15 | 3/13 | 7/13 | 16/54 |
| Dressing/self-care | 10 | 2/7 | 3/8 | 3/8 | 8/23 | 23 | 5/13 | 4/15 | 9/13 | 5/13 | 23/54 |
| Lifting/carrying objects | 20 | 4/7 | 3/8 | 3/8 | 10/23 | 24 | 5/13 | 3/15 | 7/13 | 4/13 | 19/54 |
| Walking uphill | 24 | 5/7 | 2/8 | 2/8 | 9/23 | 33 | 9/13 | 2/15 | 3/13 | 10/13 | 24/54 |
| Leisure activities | 11 | 4/7 | 2/8 | 3/8 | 9/23 | 30 | 11/13 | 4/15 | 1/13 | 8/13 | 24/54 |
| Running/hurrying | 6 | 1/7 | 0/8 | 3/8 | 4/23 | 7 | 1/13 | 1/15 | 2/13 | 1/13 | 5/54 |
| Bending over | 5 | 1/7 | 2/8 | 1/8 | 4/23 | 23 | 1/13 | 4/15 | 8/13 | 6/13 | 19/54 |
| Cycling | 16 | 0/7 | 6/8 | 2/8 | 8/23 | 12 | 0/13 | 4/15 | 1/13 | 0/13 | |
| Symptoms experienced while being active | |||||||||||
| Breathlessness | 61 | 5/7 | 8/8 | 8/8 | 21/23 | 86 | 10/14 | 12/15 | 8/13 | 10/13 | 40/54 |
| Fatigue/tiredness | 36 | 4/7 | 2/8 | 5/8 | 11/23 | 41 | 5/14 | 3/15 | 4/13 | 6/13 | 18/54 |
| Lack of strength in legs | 6 | 4/7 | 0/8 | 1/8 | 5/23 | 12 | 1/14 | 1/15 | 5/13 | 2/13 | 9/54 |
| Coughing | 6 | 3/7 | 1/8 | 0/8 | 4/23 | 6 | 0/14 | 0/15 | 1/13 | 3/13 | 4/54 |
| Adaptation strategies applied | |||||||||||
| Taking breaks | 45 | 7/7 | 8/8 | 7/8 | 21/23 | 69 | 8/14 | 6/15 | 8/13 | 12/13 | 34/54 |
| Pacing | 58 | 7/7 | 6/8 | 7/8 | 20/23 | 55 | 7/14 | 10/15 | 5/13 | 4/13 | 26/54 |
| Time needed to recover | 27 | 7/7 | 2/8 | 7/8 | 16/23 | 9 | 2/14 | 1/15 | 3/13 | 0/13 | 6/54 |
| Stop doing things you like | 55 | 6/7 | 6/8 | 4/8 | 16/23 | 54 | 10/14 | 6/15 | 5/13 | 4/13 | 25/54 |
| Reducing activities | 25 | 5/7 | 5/8 | 5/8 | 15/23 | 29 | 5/14 | 4/15 | 2/13 | 8/13 | 19/54 |
| Exercising | 25 | 4/7 | 7/8 | 4/8 | 15/23 | 34 | 5/14 | 9/15 | 3/13 | 5/13 | 22/54 |
| Spread out activities | 20 | 5/7 | 3/8 | 5/8 | 13/23 | 17 | 4/14 | 3/15 | 3/13 | 1/13 | 11/54 |
| Take medication | 11 | 5/7 | 4/8 | 0/8 | 9/23 | 25 | 10/14 | 5/15 | 1/13 | 7/13 | 23/54 |
| Use aids | 9 | 2/7 | 1/8 | 2/8 | 5/23 | 26 | 9/14 | 3/15 | 3/13 | 5/13 | 20/54 |
| Need help from others | 36 | 5/7 | 5/8 | 3/8 | 13/23 | 20 | 6/14 | 3/15 | 1/13 | 2/13 | 12/54 |
Data are presented as n or n/N. #: proportions might underestimate the coverage of each theme, as non-verbal signs of agreement (e.g. affirmative nods) by focus group participants were not counted, as sessions were not video-taped and hence agreement could not be objectified.