Table 2– European survey on management of primary ciliary dyskinesia in children: returned questionnaires, response rates and patients reported per centre
European regionsCountriesReturned questionnaires#Response rates of tertiary care centresPatients reported per centre
TotalTertiary care
Western EuropeAustria1155/5 (100)2 (1–9)
Belgium755/8 (63)3 (2–5)
France655/8 (63)26 (16–36)
Germany131010/55 (18)3 (3–4)
The Netherlands766/8 (75)6 (6–6)
Switzerland1788/8 (100)3 (1–5)
British IslesIreland11
UK321818/32 (56)4 (1–5)
Southern EuropeCyprus111/1 (100)27 (27–27)
Greece555/6 (83)4 (3–4)
Italy191515/27 (56)8 (5–14)
Portugal433/4 (75)2 (2–2)
Spain181717/25 (68)4 (2–7)
Northern EuropeDenmark111/1 (100)95 (95–95)
Finland444/5 (80)1 (1–1)
Norway336 (4–19)
Sweden1455/9 (57)2 (1–9)
Eastern EuropeBulgaria111/4 (25)
Czech Republic222/5 (40)7 (1–12)
Estonia111/2 (50)1 (1–1)
Hungary111/1 (100)43 (43–43)
Israel877/9 (78)9 (6–17)
Romania333/9 (33)3 (2–3)
Serbia211/2 (50)8 (5–11)
Slovakia111/1 (100)7 (7–7)
Turkey121212/37 (32)8 (4–11)
Total194141141/272 (52)4 (29)
  • Data are presented as n, n/N (%) or median (interquartile range). #: all questionnaires that contained a list of patients; : calculated as the number of questionnaires returned by tertiary care paediatric centres divided by the total number of tertiary care paediatric centres in the respective country.