RT Journal Article
SR Electronic
T1 Home mechanical ventilation in chronic respiratory diseases: An experience from a pediatric semi-intensive respiratory care unit
JF European Respiratory Journal
JO Eur Respir J
FD European Respiratory Society
SP p2095
VO 38
IS Suppl 55
A1 Francesco Paolo Rossi
A1 Martino Pavone
A1 Elisabetta Verrillo
A1 Alessandra Schiavino
A1 Maria Beatrice Chiarini Testa
A1 Maria Giovanna Paglietti
A1 Serena Soldini
A1 Renato Cutrera
YR 2011
UL http://erj.ersjournals.com/content/38/Suppl_55/p2095.abstract
AB Mechanical, invasive and non invasive ventilation represents an important therapeutic tool for many acute and chronic respiratory diseases in childhood.We retrospectively analyzed clinical history of children receiving home mechanical ventilation (HMV) in our Pediatric Semi-Intensive Respiratory Care Unit from 2003 to 2010.From 2003 to 2010 we treated with HMV 153 children (M/F 80/73 girls, mean age 10.5years). Most of the patients (138) were treated with non-invasive ventilation (C-PAP or BiPAP). In this group, the most frequent diagnosis were Spinal Muscular Atrophy, followed by Prader Willi syndrome, obstructive sleep apnoea, myopathies, Cystic Fibrosis, encephalopathy, cerebral palsy, muscular dystrophy, metabolic or genetic diseases and others diseases such as congenital heart disease, brain tumors and othorinolaryngohiatric diseases. Fifteen patients were treated with invasive HMV through trachestomy. In this group the most frequent diagnoses were Cerebral Palsy, followed by Spinal Muscular Atrophy, Encephalopathies and others chronic respiratory disorders (Congenital central hypoventilation syndrome, bronchopulmonary dysplasia, etc).Sixtyone percent of the patients are still in follow-up in our Unit, 17% stopped mechanical ventilation, 14% were lost to follow-up, while 8% is died. Of the 95 patients followed at our unit, only 53 (56%) has an adequate home care.Home mechanical ventilation, invasive or non-invasive, is a valid tool for the management of children with chronic respiratory diseases. In our experience home care of these patients must be improved in terms of family support (nursing, technical support, psychological support).