RT Journal Article
SR Electronic
T1 Self-cope cards: a pilot study with children affected by cystic fibrosis
JF European Respiratory Journal
JO Eur Respir J
FD European Respiratory Society
SP 577
DO 10.1183/13993003.congress-2020.577
VO 56
IS suppl 64
A1 Annamaria Bagnasco
A1 Gianluca Catania
A1 Nicoletta Dasso
A1 Ornella Corsi
A1 Chiara Benzan
A1 Veronica Pisano
A1 Martina Zerbinati
A1 Milko Zanini
A1 Loredana Sasso
YR 2020
UL http://erj.ersjournals.com/content/56/suppl_64/577.abstract
AB Introduction: Adherence to medication regimens in Cystic Fibrosis (CF) is a very important aspect of living with the condition in terms of reducing acute exacerbations and limiting the progression of the disease. Helping children with CF to autonomously manage their treatment is an important part of CF care (Faint et al. 2017).Aims and Objectives: To develop and test cards based on a problem-solving method to improve medication adherence and self-efficacy in children with CF.Methods: Self-CoPe Cards were developed based on the Barrows Card Method to manage common problems and adverse events concerning enzymatic therapy in CF through literature review, interviews and meetings with professionals and children living with the condition. The cards were used by children at home for a period of 7-10 days. Pre- and post-intervention data were collected using the General Self Efficacy Scale, the Morisky Medication adherence Scale combined with other clinical data.Results: Sixteen children (7-12 years old) were recruited and fifteen completed the study. There was an improvement in the average values of both medication adherence and self-efficacy at the end of the study. Significant differences were found between pre- and post-intervention assessments for adherence to treatment and self-efficacy. The intervention was found to be effective, as demonstrated by the effect size (Cohen’s d>0.6).Conclusions: More research is needed but this pilot study showed that children found the Self-CoPe Cards to be a useful aid for the self-management of their condition at home. The cards also improved medication adherence and increased self-efficacy.FootnotesCite this article as: European Respiratory Journal 2020; 56: Suppl. 64, 577.This abstract was presented at the 2020 ERS International Congress, in session “Respiratory viruses in the "pre COVID-19" era”.This is an ERS International Congress abstract. No full-text version is available. Further material to accompany this abstract may be available at www.ers-education.org (ERS member access only).