RT Journal Article
SR Electronic
T1 The RECHARGE database: Towards a global standard for pulmonary rehabilitation (PR)
JF European Respiratory Journal
JO Eur Respir J
FD European Respiratory Society
SP PA693
DO 10.1183/13993003.congress-2019.PA693
VO 54
IS suppl 63
A1 Robert C Free
A1 Michael Steiner
A1 Azamat Akylbekov
A1 Andy Barton
A1 Nikki Gardiner
A1 Theresa Harvey-Dunstan
A1 Rupert Jones
A1 Wincey Katagira
A1 Bruce Kirenga
A1 Jesse Matheson
A1 Ruhme Miah
A1 Mark Orme
A1 Olivia Revitt
A1 Shruti Sahasrabudhe
A1 Sundeep Salvi
A1 Anthony Seneviratne
A1 Talant Sooronbaev
A1 Sarah Ward
A1 Savi Wimalasekera
A1 Sally Singh
YR 2019
UL http://erj.ersjournals.com/content/54/suppl_63/PA693.abstract
AB Background: Implementation of PR varies dramatically across low and middle-income countries (LMICs).Aims: RECHARGE is an NIHR Global research project aiming to develop and evaluate culturally appropriate PR in several LMICs: India, Sri Lanka, Kyrgyzstan and Uganda. Key ambitions of RECHARGE are to ensure outcome measures are collected in a standardised, high quality fashion for research and to provide a standardised data set for clinical service, practical for PR programmes in LMICs.Methods: We hosted a 3-day face-to-face international meeting with our LMIC partners, clinicians, researchers, health psychologists, research methodology experts and data scientists. A consensus-based exercise was used to formulate a draft core dataset. Initially, we developed categories of outcomes and subsequently these were populated with discreet tests/questionnaires.Results: A minimal core dataset was constructed and most country-specific elements were extracted into separate country-specific research projects. However, for practical purposes we decided to include some fields in the core data set which varied dramatically between different LMICs. Following the 3 day event, a draft set of outcomes was refined in 2 subsequent global conference calls and an agreed dataset was circulated (Figure).Conclusions: This essential work will underpin both the development of research studies and the international database as we move forward in RECHARGE.FootnotesCite this article as: European Respiratory Journal 2019; 54: Suppl. 63, PA693.This is an ERS International Congress abstract. No full-text version is available. Further material to accompany this abstract may be available at www.ers-education.org (ERS member access only).