RT Journal Article
SR Electronic
T1 The RECHARGE database: Towards a global standard for pulmonary rehabilitation (PR)
JF European Respiratory Journal
JO Eur Respir J
FD European Respiratory Society
SP PA693
DO 10.1183/13993003.congress-2019.PA693
VO 54
IS suppl 63
A1 Free, Robert C
A1 Steiner, Michael
A1 Akylbekov, Azamat
A1 Barton, Andy
A1 Gardiner, Nikki
A1 Harvey-Dunstan, Theresa
A1 Jones, Rupert
A1 Katagira, Wincey
A1 Kirenga, Bruce
A1 Matheson, Jesse
A1 Miah, Ruhme
A1 Orme, Mark
A1 Revitt, Olivia
A1 Sahasrabudhe, Shruti
A1 Salvi, Sundeep
A1 Seneviratne, Anthony
A1 Sooronbaev, Talant
A1 Ward, Sarah
A1 Wimalasekera, Savi
A1 Singh, Sally
YR 2019
UL http://erj.ersjournals.com/content/54/suppl_63/PA693.abstract
AB Background: Implementation of PR varies dramatically across low and middle-income countries (LMICs).Aims: RECHARGE is an NIHR Global research project aiming to develop and evaluate culturally appropriate PR in several LMICs: India, Sri Lanka, Kyrgyzstan and Uganda. Key ambitions of RECHARGE are to ensure outcome measures are collected in a standardised, high quality fashion for research and to provide a standardised data set for clinical service, practical for PR programmes in LMICs.Methods: We hosted a 3-day face-to-face international meeting with our LMIC partners, clinicians, researchers, health psychologists, research methodology experts and data scientists. A consensus-based exercise was used to formulate a draft core dataset. Initially, we developed categories of outcomes and subsequently these were populated with discreet tests/questionnaires.Results: A minimal core dataset was constructed and most country-specific elements were extracted into separate country-specific research projects. However, for practical purposes we decided to include some fields in the core data set which varied dramatically between different LMICs. Following the 3 day event, a draft set of outcomes was refined in 2 subsequent global conference calls and an agreed dataset was circulated (Figure).Conclusions: This essential work will underpin both the development of research studies and the international database as we move forward in RECHARGE.FootnotesCite this article as: European Respiratory Journal 2019; 54: Suppl. 63, PA693.This is an ERS International Congress abstract. No full-text version is available. Further material to accompany this abstract may be available at www.ers-education.org (ERS member access only).