RT Journal Article SR Electronic T1 The importance of patient perspectives in pulmonary hypertension JF European Respiratory Journal JO Eur Respir J FD European Respiratory Society SP 1801919 DO 10.1183/13993003.01919-2018 A1 Michael D. McGoon A1 Pisana Ferrari A1 Iain Armstrong A1 Migdalia Denis A1 Luke S. Howard A1 Gabi Lowe A1 Sanjay Mehta A1 Noriko Murakami A1 Brad A. Wong YR 2018 UL http://erj.ersjournals.com/content/early/2018/10/11/13993003.01919-2018.abstract AB The assessment of objective measurement of cardiopulmonary status has helped us achieve better clinical outcomes for patients and develop new therapies through to the point of market access; however, patient surveys indicate that more can be done to improve holistic care and patient engagement. In this multidisciplinary review, we examine how clinical teams can acknowledge and embrace the individual patient's perspective, and thus improve the care for individual patients suffering from pulmonary hypertension by cultivating the importance and relevance of health-related quality of life in direct clinical care. At the individual level, patients should be provided with access to accredited specialist centres which provide a multidisciplinary approach where there is a culture focused on narrative medicine, quality of life, shared decision making and timely access to palliative care, and where there is participation in education. On a larger scale, we call for the development, expansion and promotion of patient associations to support patients and carers, lobby for access to best care and treatments, and provide input into the development of clinical trials and registries, focusing on the patients’ perspective.Analysis and discussion on the importance of patients' perspectives in pulmonary hypertension http://ow.ly/edOt30mgYoI