TY - JOUR T1 - European idiopathic pulmonary fibrosis Patient Charter: a missed opportunity JF - European Respiratory Journal JO - Eur Respir J SP - 282 LP - 283 DO - 10.1183/13993003.00505-2016 VL - 48 IS - 1 AU - Andrew Bush AU - Angelo Barbato AU - Annick Clement AU - Steve Cunningham AU - Jacques de Blic AU - Carlee Gilbert AU - Lutz Goldbeck AU - Nural Kiper AU - Nicolaus Schwerk AU - Matthias Griese Y1 - 2016/07/01 UR - http://erj.ersjournals.com/content/48/1/282.abstract N2 - The European charter for idiopathic pulmonary fibrosis is a welcome document [1], highlighting unmet needs in patients which will inform policy makers across Europe. However, it is sad that an important opportunity to involve children with interstitial lung diseases (ILDs) has been missed. There is a current pan-European paediatric ILD consortium [2] which could have been used to access these children and families. Our own work also highlighted similar themes [3]: diagnostic delay, the need for improved holistic care and written information, and also interestingly highlighted a previously undescribed issue, the high prevalence of feeding disorders in these children. So the European Charter, excellent as it is, sadly represents a lost opportunity to represent the needs of children with rare lung diseases to health commissioners.Children with ILD should also have been included in the IPF European Charter http://ow.ly/ZBfA0 ER -