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Measuring the experience of living with COPD and receiving medical care in people with COPD

Marcie A Jones, Rachael A Evans, Neil J Greening, Michael C Roberts, Nicole Toms, Matthew Hodson, Michael C Steiner
European Respiratory Journal 2020 56: 956; DOI: 10.1183/13993003.congress-2020.956
Marcie A Jones
1Leicester Medical School, University of Leicester , Leicester, United Kingdom
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  • For correspondence: maj30@student.le.ac.uk
Rachael A Evans
2Leicester NIHR BRC Respiratory Theme, Respiratory Sciences, University of Leicester, Leicester, United Kingdom
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Neil J Greening
2Leicester NIHR BRC Respiratory Theme, Respiratory Sciences, University of Leicester, Leicester, United Kingdom
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Michael C Roberts
3Queen Mary University of London, School of Medicine and Dentistry, London, United Kingdom
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Nicole Toms
4Department of Respiratory Medicine, University Hospitals of Leicester NHS trust, Leicester , United Kingdom
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Matthew Hodson
5Central London Community HealthCare NHS Trust, London, United Kingdom
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Michael C Steiner
2Leicester NIHR BRC Respiratory Theme, Respiratory Sciences, University of Leicester, Leicester, United Kingdom
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Abstract

Aim: We investigated how subscores of a patient-reported experience measure PREM-C9 discriminated experiences for patients receiving care for COPD.

Methods: Patients recruited from a complex COPD clinic completed the PREM-C9 questionnaire, together with the COPD Assessment Test (CAT), Bristol COPD Knowledge Questionnaire (BCKQ) and Health Anxiety and Depression Scale (HADS). The PREM-C9 comprises nine questions, each scored out of five. Higher scores indicating worse experience. Two sub-scores were developed; subscore 1 assessed experiences of living with COPD, (Q1-4) and subscore 2 assessed experiences of medical care, (Q5-9). Subscores were compared to the other completed questionnaires.

Results: 76 patients (FEV1% predicted 32 [IQR:24-39]%, mean age 64 (SD:±9) yr, 89% MRC dyspnoea scale grade ≥4 and 24% required home oxygen) completed the PREM-C9 questionnaire. The median total score was 16 [IQR:10-24]. The median adjusted score for subscore 1 was 2 [IQR:1-3] and for subscore 2 was 1 [IQR:1-2]. Table 1 shows the association between PREM-C9 subscores and other measures.

Conclusions: The PREM-C9 comprises elements assessing both the experience of living with COPD and healthcare use. Subscores of the PREM-C9 may be able to better discriminate these experiences for patients receiving care for COPD than the total score.

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Table 1

Association of PREM-C9 subscores with health-related quality of life, knowledge and mood.

  • COPD
  • Quality of life
  • Chronic diseases

Footnotes

Cite this article as: European Respiratory Journal 2020; 56: Suppl. 64, 956.

This abstract was presented at the 2020 ERS International Congress, in session “Respiratory viruses in the "pre COVID-19" era”.

This is an ERS International Congress abstract. No full-text version is available. Further material to accompany this abstract may be available at www.ers-education.org (ERS member access only).

  • Copyright ©the authors 2020
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Measuring the experience of living with COPD and receiving medical care in people with COPD
Marcie A Jones, Rachael A Evans, Neil J Greening, Michael C Roberts, Nicole Toms, Matthew Hodson, Michael C Steiner
European Respiratory Journal Sep 2020, 56 (suppl 64) 956; DOI: 10.1183/13993003.congress-2020.956

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Measuring the experience of living with COPD and receiving medical care in people with COPD
Marcie A Jones, Rachael A Evans, Neil J Greening, Michael C Roberts, Nicole Toms, Matthew Hodson, Michael C Steiner
European Respiratory Journal Sep 2020, 56 (suppl 64) 956; DOI: 10.1183/13993003.congress-2020.956
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