Nurse-provided education improves adherence and quality of life in adult patients with cystic fibrosis

Abstract

Objectives: Cystic fibrosis (CF) is a chronic, life-shortening disease with a significant treatment burden. Today, managing CF is an ongoing challenge - from adhering to treatment plans to managing symptoms to optimize quality of life. The aim of this study is to show if nurse-provided education can improve adherance and quality of life in patients with CF.

Methods: 28 CF patients (12 male,14 female), aged 18 to 36, were recruited from adult CF centre in Zagreb, Croatia. Nurse educated each patient on the importance of respiratory clearance and nutrition, taking medication and inhaler therapy use. Forced expiratory volume in 1 second (FEV 1 ) and BMI were measured prior to education and again 4 months later. Patients completed Short form 36 Health Survey Questionnaire (SF-36), Morisky, Green and Levine scale (MGL) and the Culig Scale before and 4 months after education.

Results: After education, FEV1 value increased by 5,27% and BMI increased 2,31%. Difference was not statistically significant but correlation shows statistically significant positive connection. Results obtained at the beginning using MGL scale show that 65% of patients (17 out of 26) occasionally forgot to take prescribed treatment. 4 months later, results show 16,9% improvement. Čulig scale indicates forgetfulness as main reason for non-adherence and 18% improvement after 4 months. Both results are not statistically significant. SF-36 indicate a positive trend in improving perception of one’s health and quality of life since 7% of patients responded their overall health improved.

Conclusion: This study suggests a significant role of the nurse in patient care and importance of nurse-provided education.