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Time trends in diagnostic testing for primary ciliary dyskinesia in Europe

Florian S. Halbeisen, Amelia Shoemark, Angelo Barbato, Mieke Boon, Siobhan Carr, Suzanne Crowley, Rob Hirst, Bulent Karadag, Cordula Koerner-Rettberg, Michael R. Loebinger, Jane S. Lucas, Bernard Maitre, Henryk Mazurek, Uğur Özçelik, Vendula Martinů, Nicolaus Schwerk, Guillaume Thouvenin, Stefan A. Tschanz, Panayiotis Yiallouros, Myrofora Goutaki, Claudia E. Kuehni
European Respiratory Journal 2019 54: 1900528; DOI: 10.1183/13993003.00528-2019
Florian S. Halbeisen
1Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland
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Amelia Shoemark
2Dept of Paediatrics, Primary Ciliary Dyskinesia Centre, Royal Brompton and Harefield Foundation Trust, London, UK
3School of Medicine, University of Dundee, Dundee, UK
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Angelo Barbato
4Italian PCD Consortium
5Dept of Paediatrics, University of Padova, Padova, Italy
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Mieke Boon
6Dept of Paediatrics, University Hospital Gasthuisberg, Leuven, Belgium
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Siobhan Carr
2Dept of Paediatrics, Primary Ciliary Dyskinesia Centre, Royal Brompton and Harefield Foundation Trust, London, UK
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  • ORCID record for Siobhan Carr
Suzanne Crowley
7Unit for Paediatric Heart, Lung, Allergic Diseases, Rikshospitalet, Oslo, Norway
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Rob Hirst
8Dept of Infection, Immunity and Inflammation, Institute for Lung Health, University of Leicester, Leicester, UK
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Bulent Karadag
9Dept of Pediatric Pulmonology, Marmara University, School of Medicine, Istanbul, Turkey
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Cordula Koerner-Rettberg
10Dept of Paediatric Pneumology, University Children's Hospital of Ruhr University Bochum, Bochum, Germany
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Michael R. Loebinger
11Host Defence Unit, Royal Brompton and Harefield NHS Foundation Trust, London, UK
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Jane S. Lucas
12Primary Ciliary Dyskinesia Centre, NIHR Respiratory Biomedical Research Centre, University of Southampton, Southampton, UK
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  • ORCID record for Jane S. Lucas
Bernard Maitre
13French Reference Centre for Rare Lung Diseases
14Hopital intercommunal de Créteil, Service de Pneumologie, DHU ATVB, Université Paris Est Créteil, Paris, France
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Henryk Mazurek
15Dept of Pneumonology and Cystic Fibrosis, Institute of Tuberculosis and Lung Disorders, Zdrój, Poland
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Uğur Özçelik
16Dept of Pediatric Pulmonology, Hacettepe University Faculty of Medicine, Ankara, Turkey
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Vendula Martinů
17Pediatric Dept, Charles University Prague and University Hospital Motol, Prague, Czech Republic
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Nicolaus Schwerk
18Clinic for Paediatric Pulmonology, Allergiology and Neonatology, Hannover Medical School, Hannover, Germany
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Guillaume Thouvenin
13French Reference Centre for Rare Lung Diseases
19Paediatric Pulmonary Dept, Trousseau Hospital APHP, Sorbonne Universities and Pierre et Marie Curie University, Paris, France
20Sorbonne Université, INSERM, Centre de Recherche Saint-Antoine, CRSA, Paris, France
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Stefan A. Tschanz
21Swiss PCD registry (CH-PCD)
22Institute of Anatomy, University of Bern, Bern, Switzerland
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Panayiotis Yiallouros
23Medical School, University of Cyprus, Nicosia, Cyprus
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Myrofora Goutaki
1Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland
24Paediatric Respiratory Medicine, Children's University Hospital of Bern, University of Bern, Bern, Switzerland
25Both authors contributed equally
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Claudia E. Kuehni
1Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland
24Paediatric Respiratory Medicine, Children's University Hospital of Bern, University of Bern, Bern, Switzerland
25Both authors contributed equally
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  • For correspondence: claudia.kuehni@ispm.unibe.ch
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Time trends in diagnostic testing for primary ciliary dyskinesia in Europe
Florian S. Halbeisen, Amelia Shoemark, Angelo Barbato, Mieke Boon, Siobhan Carr, Suzanne Crowley, Rob Hirst, Bulent Karadag, Cordula Koerner-Rettberg, Michael R. Loebinger, Jane S. Lucas, Bernard Maitre, Henryk Mazurek, Uğur Özçelik, Vendula Martinů, Nicolaus Schwerk, Guillaume Thouvenin, Stefan A. Tschanz, Panayiotis Yiallouros, Myrofora Goutaki, Claudia E. Kuehni
European Respiratory Journal Oct 2019, 54 (4) 1900528; DOI: 10.1183/13993003.00528-2019

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Time trends in diagnostic testing for primary ciliary dyskinesia in Europe
Florian S. Halbeisen, Amelia Shoemark, Angelo Barbato, Mieke Boon, Siobhan Carr, Suzanne Crowley, Rob Hirst, Bulent Karadag, Cordula Koerner-Rettberg, Michael R. Loebinger, Jane S. Lucas, Bernard Maitre, Henryk Mazurek, Uğur Özçelik, Vendula Martinů, Nicolaus Schwerk, Guillaume Thouvenin, Stefan A. Tschanz, Panayiotis Yiallouros, Myrofora Goutaki, Claudia E. Kuehni
European Respiratory Journal Oct 2019, 54 (4) 1900528; DOI: 10.1183/13993003.00528-2019
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