Contact made with LCNS | Numerical code | 0=no 1=yes 999=don't know |
Treatment intent (reflects the intent of the treating physician or MDT) | Numerical code | 1=curative intent 2=non-curative intent 3=no active treatment 999=don't know |
| Curative | This is single or multimodality treatment which is hoped will remove the threat of lung cancer to the patient's life expectancy. |
| Non-curative | This is single or multimodality treatment which is expected to gain local control, or limit the progression of the disease, but is unlikely to remove the threat of lung cancer to the patient's life expectancy. |
| No active treatment | For those patients who decline, or are too frail for, radiotherapy or chemotherapy and receive medication for symptom control or a watch and wait policy. |
First-line treatment given to primary tumour | Numerical code | Choose one option only from the list below: 1=surgery alone 2=hyperfractionated radiotherapy 3=external beam radiotherapy (curative intent but not CHART) 4=stereotactic radiotherapy 5=radiofrequency/microwave ablation 6=brachytherapy 7=palliative radiotherapy to lung primary 8=concurrent chemoradiotherapy 9=sequential chemoradiotherapy 10=induction radiotherapy (pre-surgery) 11=induction chemotherapy (pre-surgery) 12=palliative chemotherapy 13=targeted/biological therapy (TKI etc.) 14=immunotherapy 15=interventional bronchoscopy 16=specialist palliative care 17=other (free text) 999=don't know/not recorded |
First-line treatment not given or change in treatment plan | Numerical code | 0=not relevant 1=patient declined first-line treatment offered 2=patient deteriorated and no longer eligible for first-line treatment 3=hospital unable to provide first-line treatment 4=other (free text) |
Date of first-line treatment | dd/mm/yyyy | Date of the start of first-line treatment, i.e. date of operation, first day of radiotherapy or chemotherapy regime, or appointment with specialist palliative care physician. |
Type of operation Additional question only if option 1 above | Numerical code | 0=incomplete resection (residual macroscopic disease evident) 1=segmentectomy 2=wedge resection 3=lobectomy 4=bi-lobectomy 5=sleeve lobectomy 6=pneumonectomy 999=don't know |
Pathological stage Additional question only if option 1 above | Staging system used | IASLC 7th or 8th edition |
Pathological stage | Based on version used can then have drop-down menu for pathological stage |
Nature of radiotherapy Additional question only if options 2, 3, 4, 7 or 10 chosen | Total dose given (Grey) | Absolute number |
Number of fractions | Absolute number (e.g. 6) |
Number of days or radiotherapy treatment | Absolute number (e.g. 12) |
Nature of chemotherapy Additional question only if options 11 or 12 chosen | Numerical code | 1=single agent chemotherapy 2=doublet platinum-based chemotherapy 3=other (free text) 999=don't know |
Additional supportive first-line treatment given? | Numerical code | 0=no 1=yes If yes, then further question appears |
Type of additional supportive first-line treatment | Numerical code | 1=stereotactic radiotherapy to brain metastases 2=radiotherapy for spinal cord compression 3=prophylactic cranial irradiation 4=whole brain radiotherapy 5=radiotherapy for oligometastases 6=SABR for oligometastases 7=radiotherapy for SVCO 8=radiotherapy to mediastinum 9=specialist palliative care 10=surgical resection of metastases 11=pleural intervention (see below) 12=other (free text) |
Date of first radiotherapy session | dd/mm/yyyy | |
Nature of radiotherapy (1–8 above) | Total dose given (Grey) | Absolute number (e.g. 30) |
| Number of fractions | Absolute number (e.g. 6) |
| Number of days or radiotherapy treatment | Absolute number (e.g. 12) |
Date of palliative care | dd/mm/yyyy | Date of first appointment with specialist palliative care physician |
Date of surgery | dd/mm/yyyy | |
Date of pleural intervention | dd/mm/yyyy | |
Type of pleural intervention | Numerical code | 1=thoracocentesis 2=chest drain 3=pleurodesis 4=indwelling chest drain |
How is the patient followed up after first-line treatment? | Numerical code. Pick single item from list. Options are ranked in descending order. If multiple answers apply, pick the first answer in the list. | 1=regular outpatient visits with physician (member of MDT) 2=follow-up with LCNS 3=virtual follow-up after imaging 4=telephone contact with patient 5=referred back to primary care doctor 0=no follow-up 999=don't know |
Date of completion of first-line treatment | dd/mm/yyyy | |
Response to first-line treatment | Numerical code | 0=complete remission 1=partial response 2=stable disease 3=progression 999=don't know |
Date of relapse | dd/mm/yyyy | |
How was relapse detected? | Numerical code | 0=planned imaging 1=symptoms 2=incidental finding with unrelated problem 999=don't know |
Subsequent treatment to lung primary | Numerical code | More than one treatment option can be chosen during the patient treatment programme (please confirm with dates below) |
| | 1=surgery |
| | 2=chemotherapy and radiotherapy in addition to surgery (tri-modality treatment) |
| | 3=hyperfractionated radiotherapy |
| | 4=external beam radiotherapy (curative intent but not CHART) |
| | 5=stereotactic radiotherapy (3–8 fractions) |
| | 6=radiofrequency/microwave ablation |
| | 7=brachytherapy |
| | 8=palliative radiotherapy to lung primary |
| | 9=concurrent chemoradiotherapy |
| | 10=sequential chemoradiotherapy |
| | 11=palliative chemotherapy |
| | 12=targeted/biological therapy (TKI etc.) |
| | 13=immunotherapy |
| | 14=interventional bronchoscopy |
| | 15=specialist palliative care |
| | 999=don't know/not recorded |
Date of surgery | dd/mm/yyyy | |
Date of first radiotherapy session | dd/mm/yyyy | |
Nature of radiotherapy | Total dose given (Grey) | Absolute number (e.g. 30) |
| Number of fractions given | Absolute number (e.g. 6) |
| Number of days of radiotherapy treatment | Absolute number (e.g. 12) |
Date of first chemotherapy dose | dd/mm/yyyy | |
Date of last chemotherapy dose | dd/mm/yyyy | |
Date of interventional bronchoscopy | dd/mm/yyyy | |
Date of specialist palliative care | dd/mm/yyyy | Date of first appointment with specialist palliative care physician |
Clinical trial | Is the patient part of a clinical trial? Numerical code | 0=no 1=yes 999=don't know |
Date of death | dd/mm/yyyy | |