Tables
- TABLE 1
Reported median survival and numbers of children and adults with cystic fibrosis from selected registries
Country Year of annual report Median age at death years Median predicted age of survival years Percentage of adult patients (≥18 years) Total number of patients Belgium 2011# 33 NA 54.7 1171 Denmark 2010 (ECFSPR)# 33 NA 56.8 450 France 2012 28 NA 47.2 6196¶ Germany 2012 32 NA 52.4 5242 UK 2012 28 43.5 57.6+ 10 078§ Australia 2012 29 NA 49.3 3156 Canada 2012 32 49.7 58.8 3975 USA 2012 NA 41.1 49.1 27 804 #: age computed from the 2010 European Cystic Fibrosis Society patient registry (ECFSPR) data; ¶: patients whose vital status is known, whether they visited the cystic fibrosis centre or not; +: ≥16 years; §: all patients. NA: not available.
- TABLE 2
Whole-time equivalents per clinic size: adult patients
The multidisciplinary team 100 patients 150 patients ≥250 patients Consultant 1 0.5 1 1 Consultant 2 0.3 0.5 1 Consultant 3 0.5 Staff grade/fellow 0.5 1 1 Specialist registrar 0.4 0.8 1 Specialist nurse 2 3 5 Physiotherapist 2 4 6 Dietician 0.5 1 2 Clinical psychologist 0.5 1 2 Social worker 0.5 1 2 Pharmacist 0.5 1 1 Secretary 0.5 1 2 Database coordinator 0.4 0.8 1
Additional Files
Vol 47 Issue 2
Table of Contents
Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis
Jump To
- Article
- Abstract
- Abstract
- Introduction
- Taskforce methodology
- Forecasting of numbers of adults with CF
- Manpower planning
- Complexity of adult CF care
- Framework for adult CF centres
- Specific management considerations for adults with CF
- Should all adults be managed in an adult CF centre?
- Where should specialist adult CF centres be situated?
- What facilities should be available?
- Is there a role for shared care for adults with CF?
- Is there an ideal size for a CF centre?
- What is the appropriate staffing for an adult CF centre?
- How frequently should adults with CF be reviewed?
- Conclusions
- Footnotes
- References
- Figures & Data
- Info & Metrics