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Diagnosing primary ciliary dyskinesia; the patient perspective

Laura Behan, Audrey Dunn Galvin, Sarah Masefield, Fiona Copeland, Michele Manion, Bernhard Rindlisbacher, Beatrice Redfern, Jane S. Lucas
European Respiratory Journal 2015 46: PA4520; DOI: 10.1183/13993003.congress-2015.PA4520
Laura Behan
1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom
2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southamptom, United Kingdom
3School of Applied Psychology, University College Cork, Cork, Ireland
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Audrey Dunn Galvin
3School of Applied Psychology, University College Cork, Cork, Ireland
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Sarah Masefield
4European Lung Foundation, Patient Relations, Sheffield, United Kingdom
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Fiona Copeland
5Primary Ciliary Dyskinesia Family Support Group, PCD Family Support Group, Milton Keynes, United Kingdom
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Michele Manion
6Primary Ciliary Dyskinesia Foundation, PCD Foundation, Minneapolis, MN United States
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Bernhard Rindlisbacher
7Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation, Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation, Steffisburg, Switzerland
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Beatrice Redfern
5Primary Ciliary Dyskinesia Family Support Group, PCD Family Support Group, Milton Keynes, United Kingdom
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Jane S. Lucas
1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom
2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southamptom, United Kingdom
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Article Information

vol. 46 no. suppl 59
DOI 
https://doi.org/10.1183/13993003.congress-2015.PA4520

Published By 
European Respiratory Society
Print ISSN 
0903-1936
Online ISSN 
1399-3003
History 
  • Published online October 30, 2015.

Copyright & Usage 
Copyright ©ERS 2015

Author Information

  1. Laura Behan1,2,3,
  2. Audrey Dunn Galvin3,
  3. Sarah Masefield4,
  4. Fiona Copeland5,
  5. Michele Manion6,
  6. Bernhard Rindlisbacher7,
  7. Beatrice Redfern5 and
  8. Jane S. Lucas1,2
  1. 1Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom
  2. 2NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southamptom, United Kingdom
  3. 3School of Applied Psychology, University College Cork, Cork, Ireland
  4. 4European Lung Foundation, Patient Relations, Sheffield, United Kingdom
  5. 5Primary Ciliary Dyskinesia Family Support Group, PCD Family Support Group, Milton Keynes, United Kingdom
  6. 6Primary Ciliary Dyskinesia Foundation, PCD Foundation, Minneapolis, MN United States
  7. 7Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation, Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation, Steffisburg, Switzerland

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Diagnosing primary ciliary dyskinesia; the patient perspective
Laura Behan, Audrey Dunn Galvin, Sarah Masefield, Fiona Copeland, Michele Manion, Bernhard Rindlisbacher, Beatrice Redfern, Jane S. Lucas
European Respiratory Journal Sep 2015, 46 (suppl 59) PA4520; DOI: 10.1183/13993003.congress-2015.PA4520

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Diagnosing primary ciliary dyskinesia; the patient perspective
Laura Behan, Audrey Dunn Galvin, Sarah Masefield, Fiona Copeland, Michele Manion, Bernhard Rindlisbacher, Beatrice Redfern, Jane S. Lucas
European Respiratory Journal Sep 2015, 46 (suppl 59) PA4520; DOI: 10.1183/13993003.congress-2015.PA4520
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