Skip to main content

Main menu

  • Home
  • Current issue
  • ERJ Early View
  • Past issues
  • ERS Guidelines
  • Authors/reviewers
    • Instructions for authors
    • Submit a manuscript
    • Open access
    • Peer reviewer login
  • Alerts
  • Subscriptions
  • ERS Publications
    • European Respiratory Journal
    • ERJ Open Research
    • European Respiratory Review
    • Breathe
    • ERS Books
    • ERS publications home

User menu

  • Log in
  • Subscribe
  • Contact Us
  • My Cart

Search

  • Advanced search
  • ERS Publications
    • European Respiratory Journal
    • ERJ Open Research
    • European Respiratory Review
    • Breathe
    • ERS Books
    • ERS publications home

Login

European Respiratory Society

Advanced Search

  • Home
  • Current issue
  • ERJ Early View
  • Past issues
  • ERS Guidelines
  • Authors/reviewers
    • Instructions for authors
    • Submit a manuscript
    • Open access
    • Peer reviewer login
  • Alerts
  • Subscriptions

IPF Care, a support program for patients with idiopathic pulmonary fibrosis in the UK

Annette Duck, Lucy Pigram, Deeba Ahmed, Nazia Chaudhuri
European Respiratory Journal 2015 46: PA3695; DOI: 10.1183/13993003.congress-2015.PA3695
Annette Duck
1Respiratory Medicine, University Hospital of South Manchester, Manchester, United Kingdom
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Lucy Pigram
2Interstitial Lung Disease Unit, Royal Brompton Hospital, London, United Kingdom
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Deeba Ahmed
3Roche Products Ltd., Welwyn Garden City, United Kingdom
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Nazia Chaudhuri
4Respiratory Medicine, University Hospital of South Manchester, Manchester, United Kingdom
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
  • Article
  • Info & Metrics
Loading

Abstract

Background: The idiopathic pulmonary fibrosis (IPF) Care program provides long-term support and education to patients receiving pirfenidone (PFD) in the UK. Through patient-managed discussions with nurses, IPF Care supports patients living with their condition to help them manage adverse events (AEs) and adhere to therapy.

Objective: To evaluate patient feedback and satisfaction with the UK IPF Care program focusing on program discontinuation rates, discussion topics and AE management.

Methods: Data analyzed included: rates and reasons for program discontinuation; frequency, duration and topics of phone calls with IPF nurses; results from an 8-question patient satisfaction survey.

Results: Of the 465 patients enrolled, 332 (71%) remained in the program at 18 months with 49% receiving maintenance therapy (a stable PFD dose). The most common reasons for program withdrawal were discontinuation of PFD (16%) and death (11%). Of 823 calls from 239 patients, frequently discussed topics included AE management, test results, oxygen and homecare/drug delivery. 140/239 (59%) patients reported at least 1 AE, early in treatment. The majority, 66%, remained on maintenance therapy and 13% discontinued treatment. Patient satisfaction ratings were high noting that IPF Care provided a feeling of control, enhanced expectations and confidence in disease management. As a result of IPF Care, patients felt they were more likely to stay on treatment longer and that the program would be useful to other patients on PFD.

Conclusions: There is high satisfaction and a low rate of discontinuation for patients enrolled in IPF Care in the UK, highlighting the value of the advice and support patients receive in the program.

  • Idiopathic pulmonary fibrosis
  • Treatments
  • Nursing care
  • Copyright ©ERS 2015
Previous
Back to top
Vol 46 Issue suppl 59 Table of Contents
  • Table of Contents
  • Index by author
Email

Thank you for your interest in spreading the word on European Respiratory Society .

NOTE: We only request your email address so that the person you are recommending the page to knows that you wanted them to see it, and that it is not junk mail. We do not capture any email address.

Enter multiple addresses on separate lines or separate them with commas.
IPF Care, a support program for patients with idiopathic pulmonary fibrosis in the UK
(Your Name) has sent you a message from European Respiratory Society
(Your Name) thought you would like to see the European Respiratory Society web site.
CAPTCHA
This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.
Citation Tools
IPF Care, a support program for patients with idiopathic pulmonary fibrosis in the UK
Annette Duck, Lucy Pigram, Deeba Ahmed, Nazia Chaudhuri
European Respiratory Journal Sep 2015, 46 (suppl 59) PA3695; DOI: 10.1183/13993003.congress-2015.PA3695

Citation Manager Formats

  • BibTeX
  • Bookends
  • EasyBib
  • EndNote (tagged)
  • EndNote 8 (xml)
  • Medlars
  • Mendeley
  • Papers
  • RefWorks Tagged
  • Ref Manager
  • RIS
  • Zotero

Share
IPF Care, a support program for patients with idiopathic pulmonary fibrosis in the UK
Annette Duck, Lucy Pigram, Deeba Ahmed, Nazia Chaudhuri
European Respiratory Journal Sep 2015, 46 (suppl 59) PA3695; DOI: 10.1183/13993003.congress-2015.PA3695
del.icio.us logo Digg logo Reddit logo Technorati logo Twitter logo CiteULike logo Connotea logo Facebook logo Google logo Mendeley logo

Jump To

  • Article
  • Info & Metrics
  • Tweet Widget
  • Facebook Like
  • Google Plus One

More in this TOC Section

  • Self-management education using interactive application software for tablet computer to improve health status in patients with COPD: A randomized controlled trial
  • Early supported discharge/hospital at home for exacerbation of chronic obstructive pulmonary disease, A review and meta-analysis
  • Frequency of adverse consequences after spirography in patients with chronic obstructive pulmonary disease and concomitant ischemic heart disease
Show more 1.2 Rehabilitation and Chronic Care

Related Articles

Navigate

  • Home
  • Current issue
  • Archive

About the ERJ

  • Journal information
  • Editorial board
  • Press
  • Permissions and reprints
  • Advertising

The European Respiratory Society

  • Society home
  • myERS
  • Privacy policy
  • Accessibility

ERS publications

  • European Respiratory Journal
  • ERJ Open Research
  • European Respiratory Review
  • Breathe
  • ERS books online
  • ERS Bookshop

Help

  • Feedback

For authors

  • Instructions for authors
  • Publication ethics and malpractice
  • Submit a manuscript

For readers

  • Alerts
  • Subjects
  • Podcasts
  • RSS

Subscriptions

  • Accessing the ERS publications

Contact us

European Respiratory Society
442 Glossop Road
Sheffield S10 2PX
United Kingdom
Tel: +44 114 2672860
Email: journals@ersnet.org

ISSN

Print ISSN:  0903-1936
Online ISSN: 1399-3003

Copyright © 2023 by the European Respiratory Society