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The primary care routine data registry BeoNet: First pilot phase results for COPD research

Heidrun Lingner, Ines Aumann, J. Matthias Von der Schulenburg, Jeanett Radisch, Anna Nickel, Margarethe Wacker, Kreuter Michael, Leidl Reiner, Tobias Welte
European Respiratory Journal 2015 46: PA1598; DOI: 10.1183/13993003.congress-2015.PA1598
Heidrun Lingner
1Center for Public Health and Healthcare, Hanover Medical School, Hanover, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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Ines Aumann
2Center for Health Economics Hannover, Leibniz University Hanover, Hanover, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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J. Matthias Von der Schulenburg
2Center for Health Economics Hannover, Leibniz University Hanover, Hanover, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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Jeanett Radisch
1Center for Public Health and Healthcare, Hanover Medical School, Hanover, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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Anna Nickel
1Center for Public Health and Healthcare, Hanover Medical School, Hanover, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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Margarethe Wacker
4Institue of Health Economics and Health Care Management, Helmholtz Zentrum Münich, Münich, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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Kreuter Michael
5Thoraxklinik, University Hospital Heidelberg, Heidelberg, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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Leidl Reiner
4Institue of Health Economics and Health Care Management, Helmholtz Zentrum Münich, Münich, Germany
6Institue of Health Economics and Health Care Management, Ludwig-Maximilians-University Munich, Munich, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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Tobias Welte
3Department of Pulmonary Medicine, Hanover Medical School, Hanover, Germany
7German Center for Lung Research (DZL), German Center for Lung Research (DZL), Hanover, Munich, Heidelberg, Germany
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Abstract

Background: The DZL-BeoNet (“Beobachtungspraxen-Netz”)-Registry gathers complete routine data from electronic patient records from primary care practices and combines these data with patient-reported outcome measurements. BeoNet provides a quality-controlled database for health services and health economics research into COPD and other diseases.

Methods: The infrastructure for the standardized collection of pseudonymised routine data has been established and is being tested. During the pilot phase of the project, systems for data provision from pneumological and general practices were set up. Basic data concerning diagnoses, treatments, procedures, etc. were transferred via standardized secure interfaces to the test-database and compiled for analysis.

Results: A test dataset of over 10.917 patient IDs and data entries has been transferred from the electronic records to the database and is updated weekly. Additional questionnaires focusing on COPD patients' quality of life (QOL) have been tested and approved. Current descriptive results regarding the prevalence of COPD, age- and sex-distributions and the frequency of COPD-DMP participation in the test dataset can be shown at the meeting although the final quality checks have not yet been completed. Absence from work and the amount of respiratory medication for patients will be provided and compared with data from all other patients.

Outlook: The next steps are: further recruitment of practices throughout Germany; data linkage with the additional disease-specific questionnaires, ongoing quality checks and data-analysis regarding costs and QOL in COPD. The overall aim is to contribute to the improvement of pulmonary healthcare strategies.

  • Health policy
  • Monitoring
  • COPD - management
  • Copyright ©ERS 2015
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The primary care routine data registry BeoNet: First pilot phase results for COPD research
Heidrun Lingner, Ines Aumann, J. Matthias Von der Schulenburg, Jeanett Radisch, Anna Nickel, Margarethe Wacker, Kreuter Michael, Leidl Reiner, Tobias Welte
European Respiratory Journal Sep 2015, 46 (suppl 59) PA1598; DOI: 10.1183/13993003.congress-2015.PA1598

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The primary care routine data registry BeoNet: First pilot phase results for COPD research
Heidrun Lingner, Ines Aumann, J. Matthias Von der Schulenburg, Jeanett Radisch, Anna Nickel, Margarethe Wacker, Kreuter Michael, Leidl Reiner, Tobias Welte
European Respiratory Journal Sep 2015, 46 (suppl 59) PA1598; DOI: 10.1183/13993003.congress-2015.PA1598
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