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Mulitidisciplinary MND clinics - Should every hospital have one?

Anthony Carver, Tracy Ellimah, Thomas Sanctuary, Mohamed Sakel, Bandipalyam Prathibha
European Respiratory Journal 2012 40: P2075; DOI:
Anthony Carver
1Respiratory Medicine, East Kent Hospitals University NHS Foundation Trust, Ashford, Kent, United Kingdom
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Tracy Ellimah
1Respiratory Medicine, East Kent Hospitals University NHS Foundation Trust, Ashford, Kent, United Kingdom
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Thomas Sanctuary
1Respiratory Medicine, East Kent Hospitals University NHS Foundation Trust, Ashford, Kent, United Kingdom
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Mohamed Sakel
2Neurorehabilitation, East Kent Hospitals University NHS Foundation Trust, Ashford, Kent, United Kingdom
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Bandipalyam Prathibha
1Respiratory Medicine, East Kent Hospitals University NHS Foundation Trust, Ashford, Kent, United Kingdom
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Abstract

Motor neuron disease (MND) is best managed by a multi-disciplinary team, including a respiratory physician to assess for respiratory failure, for which non-invasive ventilation (NIV) is indicated. East Kent Hospitals University Foundation Trust has recently developed a regional neurology centre and has well established domiciliary ventilation services. The multi-disciplinary MND team was developed in 2008.

Aim: To review the management of MND in East Kent and the changes since the establishment of a multi-disciplinary MND team.

Methods: A retrospective analysis of the clinical notes of all patients diagnosed with MND over the last 10 years.

Results: Total number of patients with a diagnosis of MND was 65. 3 had familial disease (4.6%).

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Conclusion: The number of patients managed by the East Kent team has increased 5fold since 2008. This perhaps reflects the need for teams closer to home, which leads to better access to specialist intervention including NIV which improves survival. The mean time from symptom to diagnosis has also reduced since the introduction of a multi-disciplinary team, as has the earlier need for PEG. Further analysis may identify the contributing factors.

  • Ventilation/NIV
  • Chronic disease
  • Respiratory muscle
  • © 2012 ERS
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Mulitidisciplinary MND clinics - Should every hospital have one?
Anthony Carver, Tracy Ellimah, Thomas Sanctuary, Mohamed Sakel, Bandipalyam Prathibha
European Respiratory Journal Sep 2012, 40 (Suppl 56) P2075;

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Mulitidisciplinary MND clinics - Should every hospital have one?
Anthony Carver, Tracy Ellimah, Thomas Sanctuary, Mohamed Sakel, Bandipalyam Prathibha
European Respiratory Journal Sep 2012, 40 (Suppl 56) P2075;
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