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Human genetic research: emerging trends in ethics

Abstract

Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past decade of discovery has been accompanied by a shift in emphasis towards the ethical principles of reciprocity, mutuality, solidarity, citizenry and universality.

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Acknowledgements

The authors would like to acknowledge the invaluable assistance of Yann Joly of the Genetics and Society Project, CRDP, University of Montreal (http://www.humgen.umontreal.ca).

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Correspondence to Bartha Maria Knoppers.

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FURTHER INFORMATION

Eurobarometer

Human Genetics Commission

Human Genome Diversity Project

HumGen University of Montreal

International HapMap Project

National Bioethics Advisory Commission

President's Council on Ethics

Quebec CARTaGENE Project

UK Biobank

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Knoppers, B., Chadwick, R. Human genetic research: emerging trends in ethics. Nat Rev Genet 6, 75–79 (2005). https://doi.org/10.1038/nrg1505

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