Symptom and caregiver quality of life Month 1 and Month 3
| One month diary | Month 1 | Month 3 |
| Subjects n | 60 | 56 |
| Symptom free days | 23 (12.5–28) | 26.5 (16.3–30.0) |
| Day symptom score | 10.0 (1.0–26.3) | 4.0 (0.0–18.8) |
| Night symptom score | 8.0 (1.0–23.0) | 2.0 (0–11.8) |
| Total CGTot | 6.0 (5.2–6.3) | 6.2 (5.2–6.7) |
| CGAct | 5.9 (4.9–6.5) | 6.0 (5.1–6.8) |
| CGEmot | 6.0 (5.3–6.6) | 6.2 (5.6–6.7) |
Data are presented as median (Interquartile range). CGTot: total impact of child's symptoms on family activity; CGEmot: impact of child's symptoms on parental anxiety and emotional response; CGAct: impact of child's symptoms on family activity
symptoms were scored from 0 (none) to 5 (most severe) and summed over diary days, giving maximum score of 155
symptoms were scored from 0 (none) to 5 (most severe) and summed over diary nights, giving maximum score of 155
n=62 scored from 1 (worst) to 7 (best)
n=62 scored from 1 (worst) to 7 (best)
n=62 scored from 1 (worst) to 7 (best).