TY - JOUR T1 - BeoNet registry: Primary care (PC) routine data for health services (HSR) and health economic (HER) research into COPD, DPLD and ELD JF - European Respiratory Journal JO - Eur Respir J VL - 44 IS - Suppl 58 SP - P4009 AU - H. Lingner AU - I. Aumann AU - J.M. von der Schulenburg AU - J. Gottlieb AU - M. Vogl AU - M. Wacker AU - T. Welte Y1 - 2014/09/01 UR - http://erj.ersjournals.com/content/44/Suppl_58/P4009.abstract N2 - Objectives:Reliable PC data are needed for HSR and HER into lung disease. Within the German Center for Lung Research, the BeoNet- Registry gathers full routine data from electronic patient records (el.pat.rec.) for real-time monitoring and for longitudinal trans-sectoral cohort studies and combine these data with patient reported outcomes.Methods:Real-time, standardized routine PC data from el.pat.rec. containing pseudonymised basic claims-, diagnosis-, treatments-, procedures-, medication- and disease management data are transferred via standardized interfaces to the BeoNet Registry and compiled for analysis. Data on health-related quality of life (HrQL) and further disease-specific parameters are gathered by additional questionnaires and clinical databases and linked with Registry database.Results:Milestones achieved: approvals by both ethics committees of the Hannover Medical School and of Munich for (1) the project and (2) the data security concept; (3) cooperation with leading software developers initiated to ensure reliable data extraction and transport; (4) questionnaires for HrQL information selected, tested and adopted. (5) ongoing recruitment of participating surgeries; (6) data test-network initiated. (7) 51 physicians agreed to participate, 91 are interested;(8) > 26.000 patient IDs and data entries transferred from the el.pat.rec. to the BeoNet Registry database. (9) first queries are in progress.Conclusions:The BeoNet Registry provides a quality-proved data set for standardized assessments of disease-specific costs, HrQL and for objective outcome evaluation and contributes to the improvement of pulmonary healthcare strategies. ER -