PT - JOURNAL ARTICLE AU - Arietta Spinou AU - Amit Patel AU - Rachel Garrod AU - Caroline Elston AU - Loebinger Michael AU - Wilson Robert AU - Surinder Birring TI - Understanding patients' experience of living with non-cystic fibrosis bronchiectasis DP - 2013 Sep 01 TA - European Respiratory Journal PG - P1359 VI - 42 IP - Suppl 57 4099 - http://erj.ersjournals.com/content/42/Suppl_57/P1359.short 4100 - http://erj.ersjournals.com/content/42/Suppl_57/P1359.full SO - Eur Respir J2013 Sep 01; 42 AB - Introduction: Non-Cystic Fibrosis Bronchiectasis (NCFB) is associated with impaired health-related quality of life (HRQOL). However, in-depth understanding of patient’s experience of living with this chronic condition is limited.Aims: To acquire in-depth insights into the patient’s experience of living with NCFB.Methods: This was an exploratory study, which used informal discussions and semi-structured interviews, until saturation of the topic. Data were manually coded and grouped under concepts and categories, based on field notes, memoing and audiotapes. Concepts and categories were either predefined following literature review and advice from experts, or added as new, according to the grounded theory. Data were presented as category percentages and quotations from patients.Results: Twenty-eight patients with NCFB participated in informal discussions. New themes identified (compared to previous studies) are presented in Table 1. Twelve different participants attended in-depth interviews, during a clinically stable period. The interview participants’ median age (range) was 61 (37-78) years (3 males). Most worrying issues for participants were physical (58%), functional (17%), social (17%), and 'planning activities' categories (8%).View this table:Themes not previously reportedConclusions: This study identified new health related issues from the patients perspective, and highlights physical domain has the most impact in NCFB. This data should help develop disease specific HRQOL instruments for NCFB.