RT Journal Article
SR Electronic
T1 Developing a patient reported experience measure for COPD
JF European Respiratory Journal
JO Eur Respir J
FD European Respiratory Society
SP P1464
VO 40
IS Suppl 56
A1 Michael Roberts
A1 Sharon Andrew
A1 Susan Walker
A1 Matthew Hodson
A1 Robyn Hudson
YR 2012
UL http://erj.ersjournals.com/content/40/Suppl_56/P1464.abstract
AB IntroductionThe patient experience and patient outcomes are metrics for quality improvements in healthcare. There is no currently available patient reported experience measure (PREM) for COPD.Study AimThe aim of the study is to create a valid and reliable PREM for patients with COPD.MethodsSixty four people with COPD across the community of North East London, North Central London and Essex and 19 with recent hospital experience were interviewed to capture their patient journey with COPD. Analysis of the interview data was by a two layer approach: content and then by affective (emotive or felt) responses.ResultsEighteen different affective responses were described by patients and were grouped as positive, negative or ambivalent. Positive responses included: hope, gratitude, comfort/ reassured, acceptance, optimism, altruism, happy and respect. Negative responses included scared, anxiety, fear, frustration, worry, feeling depressed, denial and embarrassment. 'Self-motivation' and control were contextual and could be either positive or negative.The community patient groups' experience centred around five categories identified in the content analysis: 'Journey to Diagnosis'; 'Smoking'; 'Usual Care'; 'Exacerbation ('flare-up)' and 'My Everyday Life'. The hospital patient experience was categorised as: 'Going to Hospital'; 'On Arrival to Hospital'; 'On the Ward'; 'Discharge from hospital' and 'Follow-up care'. Items based on patients' affective responses were generated from the categories to develop a PREM-COPD scale.ConclusionCompletion of the testing of the PREM-COPD will result in a valid and reliable instrument to be used to measure self-defined important patient experiences when using healthcare services.