RT Journal Article
SR Electronic
T1 Quality of life of paediatric patients with cystic fibrosis and their caregivers
JF European Respiratory Journal
JO Eur Respir J
FD European Respiratory Society
SP p4567
VO 38
IS Suppl 55
A1 Reka Bodnar
A1 Klara Holics
A1 Rita Ujhelyi
A1 Lajos Kovacs
A1 Agnes Meszaros
A1 Laszlo Kadar
YR 2011
UL http://erj.ersjournals.com/content/38/Suppl_55/p4567.abstract
AB Introduction: Cystic fibrosis (CF) is the most common fatal genetic disease which has a significant impact on patient's and their caregiver's daily life.Objective: The aim of the study was to determine the quality of life (QoL) of children with CF and their parents and to compare the impact of CF on daily life to that of asthma.Methods: The Cystic Fibrosis Questionnaire (CFQ) was used to measure the QoL of children with CF and their caregivers. PedsQLTM 4.0 Generic Core Scale was used to compare QoL of paediatric CF patients and their caregivers to the QoL of asthmatic children and their parents.Results: 54 (nCF=22, nasthma=32) children's data were collected (mean age: 13.05±3.13 years). Total score of PedsQL was 71.53±13.26 by CF patients, while total score of PedsQL was 77.35±16.61 in asthmatic patients (p=0.2). CF caregivers' score was 71.17±15.26 while total score of asthmatic patients' caregivers was 71.07±14.93 (p=0.98). CFQ results are shown in the table.View this table:Quality of life of patients with CFConclusion: QoL scores were not significantly lower in children with CF than in asthmatic patients.