Abstract
Introduction: A number of questionnaires are currently used to assess HRQOL in NCFB, however little is known about their validity in this condition.
Aims: To assess the validity of HRQOL questionnaires in NCFB.
Methods: A search was conducted on Embase, Pubmend, Medline, PsychINFO and Cochrane Library. Studies (including abstracts) were selected if assessed internal consistency, repeatability and responsiveness of a HRQOL tools. Analysis used descriptive and qualitatively methods.
Results: Nine (3 abstracts) out of 392 studies were included. Four questionnaires were identified, but only QOL-B was disease specific for NCFB. Internal consistency ranged from moderate to very good and repeatability was very good. Studies that reported responsiveness, supported SGRQ, LCQ and QOL-B.
Conclusions: A few studies support adequate validity of HRQOL questionnaires in NCFB. SGRQ and QOL-B were the most frequently studied questionnaires, but these have 37 items or more. There is a need for brief, disease specific, well validated HRQOL questionnaires in NCFB.
- © 2014 ERS