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1 Division of Pulmonary and Critical Care Medicine, Dept of Medicine, and 2 the Social and Behavioral Sciences Dept of Health Services, University of Washington, Seattle, WA, USA
CORRESPONDENCE: J. Randall Curtis, Division of Pulmonary and Critical Care Medicine, Harborview Medical Center, Box 359762, 325 Ninth Avenue, Seattle, WA 98104-2499, USA. Fax: 1 2067318584. E-mail: jrc@u.washington.edu
Keywords: disease-specific instruments, health outcomes, health status, health-status instruments, generic instruments, quality of life
Received: August 21, 2002
Accepted February 20, 2003
Survival and physiological measures alone do not represent the full experiences of patients with chronic obstructive pulmonary disease. Reducing the personal and social burden of disease by improving patients' symptoms, functional status and quality of life are also important goals.
There has been a substantial increase in the use of newly developed tools that measure health status and it is important for clinicians and researchers to understand these instruments' strengths and weaknesses in providing insight into a patient's condition and experience.
Relying only on mortality and physiological outcomes could blind a clinician to significant benefits patients may receive from a treatment. A growing body of research utilises end-points assessed directly by patients whose self-reported health status includes health-related quality of life and functional status.
This article reviews major concepts and methods in health-status assessments for patients with chronic obstructive pulmonary disease, which will have an important role in assessing the efficacy and effectiveness of new treatments.
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